Thursday, January 28, 2010

Optimistic misery

Sounds daft but it's true. I've been feeling pretty down for ages yet at the same time I'm feeling quite optimistic about the future because things keep happening that are good.

Let me explain.

The ME/CFS made a reappearance quite a few times between October and December of last year, then the Menieres made my life hell over the 3 week christmas break because I ran out of the betahistine tablets.

I couldn't get any more because of first the snow and then because I was too incapacitated to write and take in the letter to the receptionist for my prescription (couldn't find the printed repeat and my surgery asks for a signed note asking for a repeat in those circumstances)

After the Menieres kicked in, it triggered a full on ME/CFS relapse then just as I started to get over that my daughter had the flu jab and gave me a stinking head cold that once again set off the Menieres and the ME/CFS

So for the best part of 3 months I've been stuck in bed unable to do my work, stressing about my inability to do work and getting ill - vicious circle.

I missed 2 exams, web application design (WAD) and Professional issues in computing (PIC) and despite being told I could have an extension on my digital entertainment systems (DES) assignment I've been unable to do ANY work on that as I had to concentrate on my Principles and Applications of web services (PAWS) exam and the portfolio for WAD.

SO, I managed to attend my PAWS exam, I think I did enough to pass despite leaving a few of the questions unfinished (started feeling a bit pants so left the 3hr exam after 1.5 hours) and I've got about 50% of the portfolio done and an extra week from now to finish the rest - which ME/CFS allowing is doable.

My support worker and the individual tutors have been great, assuming I can get the relevant documentation for my Dr (and I can't think what reason he could have not to give it) I can defer the 2 exams and the DES coursework until summer so that I can get the new semester over and done with without the extra worry of legacy work.

On top of which, I've been approached to do a conference workshop in the summer with the 2 project leaders from the CABLE group I was involved with last year - so despite my crap health, I obviously have useful knowledge and experience which leads me to be hopeful that I will be able to find a job at the end of this!

Lets hope so eh?! I'd hate to think I was killing myself for no reason!


Citoyen said...

Hey there, I've followed your blog for some time now and never really left any comments... I just wanted firstly say thanks for taking the time to document your experiences.

I've had ME for about 9 years now and not sure I've ever had the energy to document everything I've been through. I have however put together a website called Chronic Living, which is devoted to supporting others like us who struggle with the illness.

I'm just putting the finishing touches to it, but I'm putting a collection of links to other blogs on the internet and wondered how you'd feel about me putting a link to yours? (and if you're able to link to my site too, to help generate some interest, that would be great too!)

If you go to you can contact me via the form there if you want to speak to me without leaving comments here!


Vics said...

Hey John nay bovver lad, link away.
I'll add you to my sidebar asap