Monday, April 04, 2005

Hereditary?

Have just got back from the hospital with mum, she's been positively diagnosed with CFS as well - except she's had it for at least the last 20 years.
Gutted? Yes and no - she's just glad she's not got MS.

Woke up in agony this morning, Stef tried the whole massage thing bless 'im, didn't work but it's nice to be coddled *grin*
I've decided I'm going to have to start the dothiepin again and hope it was that and not the acupuncture that was helping me sleep. The last week or so has been hell - just constantly tired, and the pains have been worse again. I'm almost thinking the brain fog is worth surcease of pain - almost... I hate not being able to express myself properly and sort things out - even though I'm slightly more mentally 'optimistic' about it all.
I start my 'energy for life' program tomorrow at the hospital - graduated excersize and stuff.
Here's a rundown:

session 1:
9-10 discussion of expectations and fears, symptoms associated with the condition
10-10.30 cycle of chronic fatigue/ pain and how to break the cycle
10.30-11.30 exercise session (light physio/ circuit training)
11.30-12 goal setting

Session 2:
9-10 review of goals
10-10.30 factors affecting fatigue/ pain: thoughts behaviours emotions and external factors
10.30-11.30 exercise session
11.30-12 goal setting

Session 3:
9-10 review of goals
10-10.30 advantages/ disadvantages of pacing
10.30-11.30 exercise session
11.30-12 goal setting

session 4:
9-10 review of goals
10-10.30 barriers to return to physical activity
10.30-11.30 exercise session
11.30-12 goal setting

session 5:
9-10 review of goals
10-10.30 strategies for coping with fatigue/ pain
10.30-11.30 exercise session
11.30-12 goal setting

session 6:
9-10 review of goals
10-10.30 overview of management strategies
10.30-11.30 exercise session
11.30-12 goal setting

I'm also going to be answering questionaires each week about how it's affecting the symptoms. Fingers crossed it helps eh?!

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